In 2013 Instituto Nupef initiated a research project on the protection of privacy and personal data in the context of electronic health (e-health). It was a particularly significant year considering the recent steps of the Brazilian government to implement a national e-health policy and the efforts to create an electronic health register of the Brazilian health system’s users. In the first stage of its research, Nupef identified shortcomings in the regulation of treatment of personal data and, more specifically, health data. A draft of the e-health policy recognises the urgency of an e-health legal framework to ensure respect for patients’ privacy, and the Ministry of Health’s Department of Informatics has recently adopted measures to better regulate the treatment of patients’ health data.
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